Supportive Care Options is about allowing a person to retain their dignity, and maintaining or improving quality of life for sufferers of asbestos or dust related disease, whilst at the same time allowing their loved ones to also have a quality of life during all stages of the disease. It is not only about working out what care the sufferer needs, but most importantly, what he or she may want, or is prepared to accept. It is then about looking at what treatment, support and care options are available, and then putting in place strategies to help sufferers and their loved ones navigate the journey ahead in the best possible way to suit their needs and/or wants.
Supportive Care Options should be discussed with the Bernie Banton Foundation Support Co-ordinator as soon as possible after diagnosis. When you contact the Bernie Banton Foundation about Supportive Care Options, you will be dealing with somebody who has walked the walk. No two journeys are exactly the same, but the person you talk to will have walked a similar path. Having walked this road makes all the difference in being able to answer the multitude of questions you may have, and being able to help you navigate the often difficult journey that lay ahead for all concerned.
The Bernie Banton Foundation’s ‘Mesothelioma and Asbestos Related Support (MARSupport) Australia operates Australia-wide (and is available to New Zealanders) offering peer-based support and guidance, incorporating a 24/7 Asbestos Disease Helpline answered by someone who has lived the journey, we also can help navigate the maze of medical and care pathways from diagnosis onward with Supportive Care Options.
Importantly, we can talk to sufferers and their loved ones from a personal perspective about treatment options, including the very viable and real option of having no treatment; and the importance of maintaining dignity and quality of life. Having personally walked the asbestos disease and mesothelioma cancer journey we can talk with you about what to expect, and what is normal.
As part of Supportive Care Options we can talk about treatments, legal help, icare Dust Diseases Care, clinical trials, pain control and the importance of joining palliative care networks early (even if they not used, or have a need to be used) and much more. Importantly, we help sufferers and their carers plan a path forward, and help them have no regrets. We can offer information about:
The latest treatments and clinical trials;
Asbestos dust litigation specialists (legal help) information, referral and patient advocacy;
icare Dust Diseases Care (also known as the Dust Diseases Authority) information, referral and patient advocacy;
Local Support Groups (if available);
When talking about care, many people initially think of palliative care, which to many only conjures up images of somebody being cared for when they are near death, and hence something they shy away from discussing or being involved in. The fact is nothing could be further from the truth, palliative care encompasses much more than just end of life care (e.g. specialist pain relief), and is an important part of overall supportive care that should be embraced from the beginning of the diagnosed journey – but it is only one part, or facet, of Supportive Care Options.
“Being a part of our local palliative care network, from a relative early stage of my late wife Julie’s journey surviving with both peritoneal and separate pleural mesothelioma, allowed me to look after Julie at home for her entire three year plus journey. Between Julie and I, and nurses (along with care aids/equipment) provided by our local palliative care/hospice network, we were able to maintain Julie a quality of life, and control her pain throughout her entire mesothelioma journey. Without the help and support provided by our local palliative care network I would never have been able to envisage doing this, let alone actually doing it.”
– Rod Smith Bernie Banton Foundation MARSupport Co-ordinator
To find out more about the entire spectrum that Supportive Care Options encompasses, please don’t hesitate to contact the Foundation’s Support Co-ordinator. Please know we are here to help you, not the other way around. Let us assist you to have a journey without regrets.
The breath beneath your wings®
If you, or a loved one has been diagnosed
with MESOTHELIOMA ASBESTOS CANCER or another ASBESTOS RELATED DISEASE and you would like to talk to somebody who knows what it feels like to be in similar circumstances to what you are in, whether you are a sufferer or carer, please phone the Foundation’s 24/7 Support Helpline.
Note: The Bernie Banton Foundation is not accredited to provide advice. The information and/or advice provided is for assistance only. The advice of a qualified specialist should always be sought before making legal or medical decisions.