The Bernie Banton Foundation’s
Online Support Chat Rooms Groups + Community Group + News & Information Pages
OUR ‘SECRET’ ONLINE SUPPORT GROUP CHAT ROOMS
(Facilitated by the Bernie Banton Foundation’s Mesothelioma Asbestos Related Support (MARS) Unit)
The Bernie Banton Foundation’s Mesothelioma and Asbestos Related Support (MARS) Unit Team, have been at the forefront of asbestos-related disease online support since 2010. The Foundation’s Support Co-ordinator, Rod Smith experienced the benefits that can be derived from social media networks, whilst living the mesothelioma journey with his late wife Julie. This led Rod to being one of the earliest proponents in running social media based, actual support groups.
The value of being able to chat and fellowship on Facebook to someone virtually 24 hours a day, 7 days a week, whether it be to someone in your own backyard or on the other side of the country; or when all those around you are sleeping, is immeasurable.
The MARS Unit Team members have walked the mesothelioma and other asbestos dust related disease journeys, and as such can equate with the path members are on. If questions are raised in the groups that can’t be answered by group members then MARS Team members will endeavour to find the answer from reputable sources. Team members monitor and facilitate the support group site as much as possible – and will respond and participate when time permits.
The secret support groups are specifically only for Australians and New Zealanders (including people from other countries who are residing permanently in either Australia or New Zealand).
The following groups are set up as ‘SECRET’ which means only members of the group can find the group, see who is in the group, and what is posted.
- The MARS Family Q&A Community Forum site is specifically for sufferers, carers and immediate family members of those living the mesothelioma cancer, other asbestos related non-cancerous disease, or other dust related diseases journey and also for those bereaved who lived the journey of being the primary carer of their loved one. Being a member driven site we encourage interaction on it so members can receive and impart knowledge and hopefully gain from the experience of others.
- The MARS Carers Support Chat Room – This group has been created for the primary carers of sufferers living with either mesothelioma, asbestosis, or other asbestos related and dust diseases. It has been set up to establish a forum for carers to be able to come together to chat about things they might feel uncomfortable talking about with the person they care for, family members or with other sufferers on the same forum.
- The MARS Sufferers Support Chat Room is strictly only for sufferers living with mesothelioma asbestos cancer, or another asbestos or other dust related disease. It has been set up to create a forum for sufferers to be able to come together to chat about things they might feel uncomfortable talking about with the person who is their carer, family members or with other carers on the same forum.
- The MARS Daughters and Sons Support Chat Room is for daughters and sons of sufferers living with mesothelioma asbestos cancer, or another asbestos or other dust related disease. It has been set up to establish a forum for daughters and sons to be able to come together to chat about things they might feel uncomfortable talking about with the sufferer, family members or with other sufferers on the same forum.
- The MARS Moving Forward Bereaved Group is for those who have been bereaved due to a loved one passing after having received a mesothelioma cancer, or another asbestos or other dust disease (ADD) diagnosis. It has been set up to create a forum for members to be able to come together to chat about their feelings, grieve and move forward with others who are walking, or have walked a similar path. Being a member driven site we encourage interaction on it. This group is in addition to the Foundation’s 24/7 Support Helpline 1800 031 731.
To find out how to join these ‘SECRET’ groups, please scroll further down the page – you will find out how to join, after the ‘Community Commenting Policy’ section.
COMMUNITY MEMBERSHIP GROUP
BERNIE BANTON FOUNDATION COMMUNITY HUB
(This a membership community group site, however it is not a support group site)
BERNIE BANTON FOUNDATION COMMUNITY Asbestos Mesothelioma Awareness Support is the Facebook group site name for the Bernie Banton Foundation’s ‘Community Hub’. The group is specifically only for Australians and New Zealanders (including anyone from other countries who are residing permanently in either Australia or New Zealand). By joining this site you automatically become a member of the ‘Community Hub’. On it we will keep you informed about the Foundation, the causes it champions and asbestos and mesothelioma awareness, support and advocacy issues we feel are particularly noteworthy. We encourage members, wherever they are in the world, to post and interact about themselves and subjects pertaining to the Foundation, asbestos awareness and anti-asbestos advocacy – particularly anything relevant to Australia, New Zealand, the Pacific Islands and the South East Asia region.
Please note: This community group site is a ‘CLOSED’ Facebook ‘group site’ which means only members can post and comment on the site, and see what is posted or commented it. However, anyone can find the group and see who is in it, which helps the group grow. This Community Group site is not a Support Group site.
IMPORTANT: To join this group, click on the group title, in the main description, this will take you to the group site. Please read the on-site description of the group, then click on the ‘Join’ button under the ‘header photo’, a question block will come up, in an indeavour to avoid made up cyber people being on these sites, the basic security questions asked when applying to join are required to be answered. It is also required you ask to ‘Add Friend‘ Rod Smith on Facebook: https://www.facebook.com/RodSmith.MrAntiAsbestos
PUBLIC FACEBOOK NEWS & INFORMATION PAGES
(Click on the titles to take you straight to the desired page)
COMMUNITY COMMENTING POLICY
By participating in any of the Foundation’s groups, you are agreeing to abide by our community commenting policy.
- What is discussed on a group must stay within that group, it must not be copied, transmitted or conveyed verbally to any person or entity outside the group.
We reserve the right to delete posts containing any of the following elements:
- profanity
- personal attacks
- willful misinformation
- spam
- Articles emanating from web and social media sites sponsored by specialist asbestos or dust litigators
- any advertising
- self interest, or own group, or organisation promotion
- off-topic / irrelevant posts
- anything that infringes on copyrights or trademarks
- promoting illegal or questionable activities
- promoting treatments that have not been vetted in peer reviewed respected scientific journals
- any comment that is felt to be inappropriate or offensive
- anything that is contrary to the vision, mission or objectives of the Bernie Banton Foundation
Members who violate this policy, will be deleted from the support group.
HOW TO REGISTER AND JOIN
MARS AUSTRALIA ONLINE ‘SECRET’ SUPPORT GROUPS
To guard against made-up cyber-space identities, and to ensure the groups only have members who are qualified to be in them, the Foundation has instituted a strict registration joining policy. We ask all persons applying to become a member to help us keep the support groups private and secure by providing the details asked for. Your information is not given to any third party, including other group members.
To register to join, contact Rod Smith and let him know you would like to be a member of the MARS ‘Secret’ Support Group’ and how you qualify to be a member. Importantly, please also include verifiable contact details, including your actual name, your email address, a phone number you are able to be contacted on, and the address you live at. You will also need to ‘Friend’ Rod on Facebook, to enable him to join you to the group(s) you are eligible to join . To see how to do so scroll further down this page for step by step instructions or simply click here to go direct to Rod’s Facebook page and then click Add Friend in the header section.
You can contact Rod via one of the two methods listed below:
Email (preferred)
angels@berniebanton.com.au
Phone the Freecall 24/7 Support Helpline
1800 031 731
Please REMEMBER to include your verifiable contact details, including your email address, a phone number you are able to be contacted on, and your actual living address. You cannot be added to the group without this information first being supplied and being verified – unfortunately we cannot make exceptions to this rule.
To enable Rod to add you as a member to the Support Group you need to be his friend on Facebook. To add Rod as a Facebook friend, simply [click here] to go to his page.
Once on Rod’s page, click on the Add Friend button to become his friend.
As soon as Rod sees your friend request and accepts you as a friend, he will add you to the groups you are eligible to be a member of, providing it has been established you meet the criteria to join the group, and your supplied contact details have been able to be verified.
Once you have been added to the support group, you will be notified in the Facebook ‘World Globe’ Notification Icon, located in the blue bookmark bar at the top of your Facebook page on the right hand side.
Click on the notification icon, you will then see a list of your notifications drop down (appear). Go down your notifications until you see see one that will look like the example graphic below, it will say the name of the support group – Mesothelioma Family Q&A Family Chat Room (not the one used as an example).
Click on the notification, this will take you to the Support Group page, at the very top of the page there will be a message for you saying you have been invited to the Support Group (see the example graphic below), simply click on the blue Join group button – you will then be a member.
We thank you for becoming a MARS Australia Online Support Group member, we sincerely hope the support group, your fellow members and the Mars Australia Network Team helps you to walk your individual journey path, providing support, hope and importantly, having no regrets. – Rod Smith, Support Co-ordinator, Bernie Banton Foundation
If you, or a loved one has been diagnosed with mesothelioma cancer, or another asbestos or other dust related disease, and...
If you would like to talk to somebody who knows what it feels like to be in similar circumstances to what you are in, whether you are a sufferer or carer, please phone the Foundation’s 24/7 Support Helpline Freecall® number: 1800 031 731
Note: The Bernie Banton Foundation is not accredited to provide advice. The information and/or advice provided is for assistance only. The advice of a qualified specialist should always be sought before making legal or medical decisions.